Weekend Update

Gene: Hey Jen, do you want me to bring you back anything from London?

Me: Paul McCartney.

Gene: I’ll see what I can do.

 

That was just one of the fun conversations I had this weekend. We spent Friday night at the Downtown Aquarium celebrating some family birthdays. Our meal was fabulous and we had a nice time as a family. The night included a ride on the ferris wheel, the most beautiful view of Houston I’ve ever seen, playing in an octopus’s garden, lots of fish, and white tigers. We also sang happy birthday to John, even though it wasn’t his birthday. You can see pictures from the night here: http://tamu.facebook.com/album.php?aid=2019951&l=66d78&id=199305787

 

Saturday night we headed to EinStein’s Pub to see The Fab 5 perform. They were great and we enjoyed drinking, eating, dancing and talking. I left early because I was worn out. I wish I could have stayed longer.

It is amazing how easily I get worn out. I try not to get frustrated because I know my body has been through so much lately. It just gets a bit old when things like driving are too much for your brain to handle.

 

Our family is now getting ready to head to Mo Ranch in the Texas Hill Country for Easter weekend. I think we are all ready for some sun, relaxing, and playing in the river.

Then in May we have the Kentucky Derby party. Our box from Kentucky arrived this week and it was very exciting to open it and see all the stuff inside. I have my hat and I can’t wait to wear it!

I think now I shall return to my bed. It’s overcast outside and the perfect day to go back to bed.

All Good

Feeling much better.  Doing lots of stuff.  Just too lazy to post.

It’s more than a feeling, when I hear that old song they used to play.

The following post has a large section about suicide. I know that not all of my readers might want to read that so this is your warning. To read the post, please click on the link below.

an excerpt

from a super double secret e-mail to Lars Bars:

I threw up on Richmond on the way home with this black Tranny hooker totally watching me do it and giving me a “you go girl” kind of look. It wasn’t fun puking but at least it was memorable.

That is just kind of how life is right now. Not fun. But memorable.

Is there any way at all to turn off your inner monologue?

Oh yeah, I made spring break plans and posted them on Facebook. But I guess I’ll leave them here for you guys too.

Activity:	moaning, groaning, and complaining
Location:	my bed
Description:	Jen will continue to be sick in bed and try and appreciate the fact that she can… … …catch up on sleep? Oh yeah. She is also reading tons about Vipassana Meditation and Hinduism which are two totally unrelated and fascinating things though she is mainly reading about them because she left her book about Bali at Mr. Wizard’s.

Yeah, and I think that “getting better” thing I wrote before was total bull-shit. I feel like I’m going to die and only get sicker with each passing night. That is how I really feel.

It’s Getting Better All The Time

Thank you for all the prayers. I’m doing so much better. I kept getting frustrated with how awful I felt and then my family would remind me that I pretty much have just gone through chemotherapy. I still sleep all the time right now. The blisters in my mouth and down my throat have yet to disappear. But I am getting a little stronger and a little better everyday. The drugs are also progressing enough that I’m starting to show a rash on my face.

For now I shall sip this hot chocolate and then return to my bed. I do promise I will return to blogging when I feel like it.

uh

I am really, really sick right now.

hopefully heading home

I’m heading home today.  Lots of rest is ahead for me since Meningitis isn’t something I want to have around .

The chemical burn has already started.  The best way to describe it is like having a sunburn that comes from the inside of your skin out to the top layer.  Prayers would be appreciated as it is quite painful.  It is nice to know what to expect.  I guess I’ve got that going for me.

My head still hurts but not quite as badly as it did before.  We are praying that the Solu-Medrol continues to keep working on my body even after I leave the hospital today.  I long to curl up in bed with my babies!  I miss them so much.

Still playing with my motorized bed!

Day four of my hospital stay and day two of steroids is over. I’m doing well. It doesn’t feel like I’ve been here for four days already. My face is just starting to get puffy. I don’t have a rash all over it yet but that usually doesn’t set in until about two weeks past the start of my treatment. My last of my ten steroid treatments will be on Monday night so I get to go home Tuesday! I miss my babies so much! It will be nice to sleep in my own bed.

My family has been so great. They are happily visiting me and making sure there is some member of the family with me during the day. This has become a bigger sacrifice for them as I am keeping my room around 55 degrees all the time. It feels great to me since the steroids are making me hot.

I did suffer with some major head pain today. I’m struggling with constant headaches. I understand that headaches come with the territory of PTC but it doesn’t make dealing with them any easier. They are very wearing after long periods of time. A three week straight migraine gets old…fast.

Well, this was just to update you guys. Thank you to Paine, Uncle Mike, Hoff, and Mr. Wizard who all came and spent time with me over the past few days. Thank you to all of those who are unable to come see me but are keeping me in their prayers.

Now I’m off to bed so I don’t eat everything in site like these drugs want me to.

drip drip drip

Here I sit in the hospital. I’ll be here at least through the weekend. They found an elevated protein level in my spinal fluid which is a sign of my shunt causing irritation. It looks like I have Aseptic Meningitis once again. Yuck!

So for those of you who remember my 21st birthday and how I had a big, round, red face thanks to steroids….well…it will be happening again. Let the tomato jokes begin!

IV steroid treatments aren’t all that bad. I always have tons of energy. Unlike last time, I have a laptop to keep me company. Yay! You guys should e-mail me!